{"id":774,"date":"2024-06-07T14:24:52","date_gmt":"2024-06-07T12:24:52","guid":{"rendered":"https:\/\/kampanj.expressen.se\/hjarnfonden\/?p=774"},"modified":"2024-06-07T14:24:52","modified_gmt":"2024-06-07T12:24:52","slug":"als-forskaren-vi-befinner-oss-vid-en-brytpunkt","status":"publish","type":"post","link":"https:\/\/kampanj.expressen.se\/hjarnfonden\/als-forskaren-vi-befinner-oss-vid-en-brytpunkt\/","title":{"rendered":"ALS-forskaren: \u201dVi befinner oss vid en brytpunkt\u201d"},"content":{"rendered":"

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D\u00e4rf\u00f6r p\u00e5verkar k\u00f6net
n\u00e4r du f\u00e5r din diagnos<\/h1>\n

” content_phone=”<\/p>\n

D\u00e4rf\u00f6r p\u00e5verkar k\u00f6net n\u00e4r du f\u00e5r din diagnos<\/h1>\n

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ALS-forskaren: \u201dVi befinner oss vid en brytpunkt\u201d<\/h1>\n

[\/et_pb_text][et_pb_icon font_icon=”3||divi||400″ icon_color=”#FFFFFF” icon_width=”55px” icon_width_tablet=”55px” icon_width_phone=”50px” icon_width_last_edited=”on|phone” _builder_version=”4.25.0″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_icon][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.25.1″ _module_preset=”default” theme_builder_area=”post_content” max_width=”250px” positioning=”absolute” position_origin_a=”bottom_right” custom_padding=”||0px||false|false” custom_margin=”||0px||false|false” vertical_offset=”10px” horizontal_offset=”10px” hover_enabled=”0″ sticky_enabled=”0″][et_pb_column _builder_version=”4.25.1″ _module_preset=”default” type=”4_4″ theme_builder_area=”post_content”][et_pb_text _builder_version=”4.25.1″ _module_preset=”default” theme_builder_area=”post_content” text_text_shadow_style=”preset3″ text_text_color=”#FFFFFF” text_font_size=”16px” hover_enabled=”0″ sticky_enabled=”0″ text_orientation=”right” text_font_size_last_edited=”on|phone” text_font_size_tablet=”16px” text_font_size_phone=”14px”]<\/p>\n

Foto: Mattias Pettersson<\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ custom_padding_last_edited=”on|tablet” admin_label=”Artikel\/text 1″ _builder_version=”4.19.0″ _module_preset=”default” background_color=”#FFFFFF” custom_padding=”50px||50px||true|false” custom_padding_tablet=”50px||50px||true|false” custom_padding_phone=”40px||40px||true|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row custom_padding_last_edited=”off|phone” _builder_version=”4.25.0″ _module_preset=”default” background_enable_color=”off” width_tablet=”80%” width_phone=”90%” width_last_edited=”on|phone” max_width=”640px” max_width_last_edited=”off|desktop” module_alignment=”center” custom_margin=”||||false|false” custom_padding=”0px|0px|0px|0px|false|true” custom_padding_tablet=”|60px||60px|true|true” custom_padding_phone=”|30px||30px|true|true” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.25.1″ _module_preset=”default” text_font=”Arial|600|||||||” text_text_color=”#141414″ text_font_size=”18px” text_line_height=”1.5em” header_3_font=”di-benton-bold||||||||” header_3_text_color=”#222222″ header_3_font_size=”19px” header_3_line_height=”1.5em” custom_padding=”||22px||false|false” custom_padding_tablet=”||22px||false|false” custom_padding_last_edited=”off|desktop” hover_enabled=”0″ text_font_size_phone=”18px” text_font_size_last_edited=”off|desktop” text_line_height_tablet=”” text_line_height_phone=”” text_line_height_last_edited=”on|desktop” header_3_font_size_tablet=”” header_3_font_size_phone=”18px” header_3_font_size_last_edited=”on|phone” border_width_bottom=”1px” border_color_bottom=”rgba(0,0,0,0.15)” global_colors_info=”{}” theme_builder_area=”post_content” sticky_enabled=”0″]Flera nya bromsmediciner mot ALS testas just nu och neurologen och forskaren Karin Forsberg k\u00e4nner sig hoppfull inf\u00f6r framtiden.
\n\u2013 Vi b\u00f6rjar faktiskt se ljuset i tunneln, konstaterar hon.<\/span>
\nAtt drabbas av ALS \u00e4r en tragedi b\u00e5de f\u00f6r den sjuke och f\u00f6r omgivningen. Idag finns inget botemedel och sjukdomen leder oundvikligen till d\u00f6den, genom att kroppen f\u00f6rlamas bit f\u00f6r bit.<\/span>[\/et_pb_text][et_pb_text _builder_version=”4.25.1″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#141414″ text_font_size=”18px” text_line_height=”1.5em” header_font_size=”24px” header_2_font=”Siri-Expressen||||||||” header_2_text_color=”#222222″ custom_padding=”|20px|||false|false” custom_padding_tablet=”|0px|||false|false” custom_padding_phone=”” custom_padding_last_edited=”on|desktop” hover_enabled=”0″ header_2_font_size_tablet=”” header_2_font_size_phone=”23px” header_2_font_size_last_edited=”on|phone” global_colors_info=”{}” theme_builder_area=”post_content” sticky_enabled=”0″]<\/p>\n

Karin Forsberg, l\u00e4kare p\u00e5 Norrlands universitetssjukhus och forskare vid Ume\u00e5 universitet, b\u00f6rjade studera ALS redan under sin l\u00e4karutbildning.<\/p>\n

\u2013 Jag kom i kontakt med ALS i ton\u00e5ren, d\u00e5 en av min pappas kollegor drabbades. D\u00e4rf\u00f6r f\u00f6ll det sig naturligt ta kontakt med den forskargrupp som h\u00f6ll p\u00e5 med just ALS, f\u00f6rklarar hon.<\/p>\n

I sin forskning fokuserar hon framf\u00f6r allt p\u00e5 att f\u00f6rs\u00f6ka s\u00e4rskilja olika typer av ALS:<\/p>\n

\u2013 Idag vet vi att ALS inte \u00e4r en enda sjukdom utan mer ett paraplybegrepp och jag tror att olika typer av sjukdomen kommer att kr\u00e4va olika behandlingar.<\/p>\n

D\u00e4rf\u00f6r studerar hon just nu hur ALS visar sig hos olika patienter, b\u00e5de i mikroskopet och kliniskt:<\/p>\n

\u2013 Hos en del b\u00f6rjar den med talsv\u00e5righeter, hos andra med f\u00f6rlamning i en arm eller ett ben. Andra har frontallobsdemens som f\u00f6rsta symptom.<\/p>\n

EXTERN L\u00c4NK: L\u00e4s mer om ALS<\/strong><\/a><\/p>\n

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Karin Forsberg, l\u00e4kare p\u00e5 Norrlands universitetssjukhus och forskare vid Ume\u00e5 universitet.
Foto: Mattias Pettersson<\/p>\n

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Kontakten med de drabbade betydelsefull<\/h2>\n

I sin egenskap av neurolog tr\u00e4ffar Karin Forsberg m\u00e5nga ALS-patienter. F\u00f6r henne som forskare \u00e4r kontakten med de drabbade betydelsefull.<\/p>\n

\u2013 Jag beh\u00f6ver g\u00e5 till k\u00e4llan. Sj\u00e4lvklart ber\u00f6rs jag av patienternas \u00f6de och k\u00e4nner vemod \u00f6ver att \u00e4nnu en m\u00e4nniska drabbas, men jag f\u00f6rs\u00f6ker oms\u00e4tta detta till energi i forskningen.<\/p>\n

\u2013 N\u00e4r de v\u00e4l tagit sig igenom den f\u00f6rsta chocken \u00e4r det m\u00e5nga som reser sig igen och forts\u00e4tter att k\u00e4mpa mot sjukdomen, f\u00f6r kommande generationers skull.<\/p>\n

F\u00f6r Karin Forsberg \u00e4r b\u00e5de patienterna och deras anh\u00f6riga oumb\u00e4rliga i forskningsarbetet.<\/p>\n

\u2013 Forskning \u00e4r ett teamarbete och i det teamet ing\u00e5r inte bara forskare och l\u00e4kare \u2013 det \u00e4r tack vare patienterna som deltar som vi kan forska.<\/p>\n

Hon betonar ocks\u00e5 betydelsen som organisationer som Hj\u00e4rnfonden har i sammanhanget.<\/p>\n

\u2013 Det \u00e4r deras anslag som g\u00f6r att vi kan forts\u00e4tta v\u00e5rt arbete. Och bakom organisationerna finns det i sin tur engagerade bidragsgivare.<\/p>\n

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\u201dJag hoppas och tror att vi inom \u00f6versk\u00e5dlig framtid kommer att kunna bromsa sjukdomen och kanske \u00e4ven stoppa vidare utveckling.\u201d<\/h1>\n

Karin Forsberg<\/p>\n

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Nya bromsmediciner<\/h2>\n

S\u00e5 sent som i v\u00e5ras fick Karin Forsberg ett anslag fr\u00e5n Hj\u00e4rnfonden, pengar som gjort det m\u00f6jligt f\u00f6r henne att bygga upp ett eget forskningslabb.<\/p>\n

F\u00f6rutom den egna forskningen utf\u00f6r Karin Forsberg kliniska studier med nya l\u00e4kemedel och hon n\u00e4r ett visst hopp inf\u00f6r framtiden:<\/p>\n

\u2013 Det \u00e5terst\u00e5r j\u00e4ttemycket att g\u00f6ra, men jag tror att vi befinner oss i en brytpunkt. Just nu testas nya l\u00e4kemedel som har potential att ha en riktigt bromsande effekt f\u00f6r vissa grupper av patienter, framf\u00f6r allt de med familj\u00e4r ALS, det vill s\u00e4ga de som har n\u00e5gon n\u00e4ra anh\u00f6rig som drabbats tidigare.<\/p>\n

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Foto: Mattias Pettersson<\/p>\n

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I takt med att nya bromsmediciner tas fram och f\u00f6rhoppningsvis blir godk\u00e4nda blir det ocks\u00e5 allt viktigare att uppt\u00e4cka sjukdomen i tid.<\/p>\n

\u2013 Det handlar b\u00e5de om att \u00f6ka kunskapen kring ALS och om att leta efter nya s\u00e4tt att diagnosticera sjukdomen p\u00e5, och det \u00e4r ocks\u00e5 n\u00e5got vi jobbar med.<\/p>\n

Karin Forsberg tror att vi kommer att f\u00e5 se stora framsteg de kommande \u00e5ren:<\/p>\n

\u2013 Jag hoppas och tror att vi inom \u00f6versk\u00e5dlig framtid kommer att kunna bromsa sjukdomen och kanske \u00e4ven stoppa vidare utveckling. Och i de fall d\u00e4r man k\u00e4nner till att det finns en \u00e4rftlighet kan det kanske till och med bli m\u00f6jligt att f\u00f6rhindra att sjukdomen bryter ut.<\/p>\n

EXTERN L\u00c4NK: St\u00f6d forskningen om ALS och andra av hj\u00e4rnans sjukdomar och diagnoser. Bli m\u00e5nadsgivare hos Hj\u00e4rnfonden.<\/a><\/strong><\/p>\n

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Hj\u00e4rnfonden<\/h3>\n

Hj\u00e4rnfonden arbetar f\u00f6r ett samh\u00e4lle d\u00e4r alla hj\u00e4rnor n\u00e5r sin fulla potential, fria fr\u00e5n sjukdomar. Det m\u00f6jligg\u00f6rs genom insamling och finansiering av hj\u00e4rnforskning, samt kunskapsspridning och opinionsbildning. De senaste 25 \u00e5ren har Hj\u00e4rnfonden, tack vare g\u00e5vor fr\u00e5n privatpersoner, f\u00f6retag och testamenten, delat ut n\u00e4ra en miljard kronor till olika forskningsprojekt.<\/p>\n

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Vad \u00e4r ALS?<\/h3>\n

ALS (amyotrofisk lateralskleros) \u00e4r namnet p\u00e5 en grupp neurodegenerativa sjukdomar d\u00e4r nervceller i hj\u00e4rnan, hj\u00e4rnstammen och ryggm\u00e4rgen d\u00f6r. Det leder i sin tur till muskelf\u00f6rtvining och f\u00f6rlamning. De flesta som f\u00e5r ALS insjuknar mellan 50\u201370 \u00e5rs \u00e5lder. Man kan i dag inte bli frisk fr\u00e5n ALS, men det finns l\u00e4kemedel som bromsar sjukdomsf\u00f6rloppet n\u00e5got och som kan lindra vissa symtom. Forskning p\u00e5g\u00e5r, men \u00e4nnu \u00e5terst\u00e5r mycket f\u00f6r att l\u00f6sa g\u00e5tan med ALS.<\/p>\n

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ALS-forskaren: \u201dVi befinner oss vid en brytpunkt\u201dFoto: Mattias PetterssonFlera nya bromsmediciner mot ALS testas just nu och neurologen och forskaren Karin Forsberg k\u00e4nner sig hoppfull inf\u00f6r framtiden. \u2013 Vi b\u00f6rjar faktiskt se ljuset i tunneln, konstaterar hon. Att drabbas av ALS \u00e4r en tragedi b\u00e5de f\u00f6r den sjuke och f\u00f6r omgivningen. Idag finns inget botemedel […]<\/p>\n","protected":false},"author":1,"featured_media":781,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-774","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-okategoriserade"],"_links":{"self":[{"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/posts\/774","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/comments?post=774"}],"version-history":[{"count":12,"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/posts\/774\/revisions"}],"predecessor-version":[{"id":800,"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/posts\/774\/revisions\/800"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/media\/781"}],"wp:attachment":[{"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/media?parent=774"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/categories?post=774"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/tags?post=774"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}