Petra Sedlinger sitter vid k\u00f6ksbordet i sin l\u00e4genhet i s\u00f6dra Stockholm och t\u00e4nker p\u00e5 \u00e5ret som g\u00e5tt sedan hon fick sina f\u00f6rsta symtom. Det b\u00f6rjade i sj\u00e4lva verket l\u00e5ngt tidigare. Men det var s\u00e5 diffust \u2013 allt fr\u00e5n sendrag och kramper till svaghet i kroppen.<\/span><\/p>\n[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”2_3,1_3″ use_custom_gutter=”on” gutter_width=”2″ custom_padding_last_edited=”off|desktop” _builder_version=”4.25.1″ _module_preset=”default” background_enable_color=”off” width_tablet=”80%” width_phone=”90%” width_last_edited=”on|phone” max_width=”640px” max_width_last_edited=”off|phone” module_alignment=”center” custom_padding=”22px|0px|0px|0px|false|true” custom_padding_tablet=”|60px||60px|false|true” custom_padding_phone=”19px|30px|0px|30px|false|true” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”2_3″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.25.0″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#141414″ text_font_size=”18px” text_line_height=”1.5em” header_font_size=”24px” header_2_font=”Siri-Expressen||||||||” header_2_text_color=”#222222″ custom_padding=”|20px|||false|false” custom_padding_tablet=”|0px|||false|false” custom_padding_phone=”” custom_padding_last_edited=”on|desktop” header_2_font_size_tablet=”” header_2_font_size_phone=”23px” header_2_font_size_last_edited=”on|phone” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n
\u2013 Det var f\u00f6rst n\u00e4r jag och en kompis skulle \u00e5ka till Grekland som jag ins\u00e5g att n\u00e5got verkligen var fel. Jag hade blivit s\u00e5 svag i handen att jag inte kunde trycka ner flygplanss\u00e4tet.<\/p>\n
Petra v\u00e4nde sig till v\u00e5rdcentralen. Det blev startskottet f\u00f6r en rad olika unders\u00f6kningar innan hon till slut fick det besked som hon hade fruktat allra mest \u2013 den obotliga sjukdomen ALS. Sjukdomen inneb\u00e4r att nervceller i hj\u00e4rnan, hj\u00e4rnstammen och ryggm\u00e4rgen d\u00f6r. Det leder i sin tur till muskelf\u00f6rtvining och f\u00f6rlamning.<\/p>\n
[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ admin_label=”Bild” _builder_version=”4.25.0″ _module_preset=”default” animation_style=”fade” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-content\/uploads\/2024\/05\/hf-Petra-Sedlinger18.jpg” title_text=”hf-Petra-Sedlinger18″ src_tablet=”https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-content\/uploads\/2023\/06\/hf-victoria-16×9-1.jpg” src_phone=”https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-content\/uploads\/2023\/06\/hf-victoria-1×1-1.jpg” src_last_edited=”off|desktop” _builder_version=”4.25.1″ _module_preset=”default” custom_margin=”7px||0px||false|false” custom_margin_tablet=”20px||||false|false” custom_margin_phone=”20px||||false|false” custom_margin_last_edited=”on|phone” custom_padding=”||0px||false|false” animation_style=”fade” border_radii=”on|16px|16px|16px|16px” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_image][et_pb_text _builder_version=”4.25.1″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#757575″ text_font_size=”16px” text_line_height=”1.3em” width_phone=”85%” width_last_edited=”off|phone” max_width_phone=”90%” max_width_last_edited=”off|phone” module_alignment=”center” custom_padding=”5px||||false|false” custom_padding_tablet=”5px||20px||false|false” custom_padding_phone=”5px||15px||false|false” custom_padding_last_edited=”on|desktop” locked=”off” global_colors_info=”{}” width__hover_enabled=”off|desktop” theme_builder_area=”post_content”]Petra Sedlinger.
\nFoto: My Matson[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row custom_padding_last_edited=”off|phone” _builder_version=”4.25.0″ _module_preset=”default” background_enable_color=”off” width_tablet=”80%” width_phone=”90%” width_last_edited=”on|phone” max_width=”640px” max_width_last_edited=”off|desktop” module_alignment=”center” custom_margin=”||||false|false” custom_padding=”0px|0px|0px|0px|false|true” custom_padding_tablet=”|60px||60px|true|true” custom_padding_phone=”|30px||30px|true|true” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.25.0″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#141414″ text_font_size=”18px” text_line_height=”1.5em” header_font_size=”24px” header_2_font=”Siri Expressen||||||||” header_2_text_color=”#141414″ custom_padding=”18px||||false|false” header_2_font_size_tablet=”” header_2_font_size_phone=”23px” header_2_font_size_last_edited=”on|phone” border_color_bottom=”rgba(0,0,0,0.15)” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n
\u2013 Jag visste att man kan drabbas p\u00e5 olika s\u00e4tt, att det \u00e4r en av de v\u00e4rsta sjukdomarna som en m\u00e4nniska kan f\u00e5 och att man d\u00f6r av den.<\/p>\n
\u2013 Det \u00e4r jobbigt att f\u00e5 ett s\u00e5dant h\u00e4r besked och det \u00e4r viktigt hur man blir bem\u00f6tt. Det \u00e4r ocks\u00e5 jobbigt att ber\u00e4tta f\u00f6r m\u00e4nniskor och g\u00f6ra dem s\u00e5 ledsna.<\/p>\n
[\/et_pb_text][et_pb_text module_class=”fakta” _builder_version=”4.25.0″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#141414″ text_font_size=”18px” text_line_height=”1.5em” header_font_size=”24px” header_2_font=”Siri Expressen||||||||” header_2_text_color=”#141414″ custom_margin=”27px||0px||false|false” custom_padding=”16px|16px|16px|16px|true|true” header_2_font_size_tablet=”” header_2_font_size_phone=”23px” header_2_font_size_last_edited=”on|phone” border_width_all=”1px” border_color_all=”#ebebeb” border_color_bottom=”rgba(0,0,0,0.15)” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n
Hj\u00e4rnfonden<\/h3>\n
Hj\u00e4rnfonden arbetar f\u00f6r ett samh\u00e4lle d\u00e4r alla hj\u00e4rnor n\u00e5r sin fulla potential, fria fr\u00e5n sjukdomar. Det m\u00f6jligg\u00f6rs genom insamling och finansiering av hj\u00e4rnforskning, samt kunskapsspridning och opinionsbildning. De senaste 25 \u00e5ren har Hj\u00e4rnfonden, tack vare g\u00e5vor fr\u00e5n privatpersoner, f\u00f6retag och testamenten, delat ut n\u00e4ra en miljard kronor till olika forskningsprojekt.<\/p>\n
[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ fullwidth=”on” _builder_version=”4.25.0″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_fullwidth_image title_text=”hf-petra-3″ _builder_version=”4.25.0″ _module_preset=”default” background_image=”https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-content\/uploads\/2024\/05\/hf-petra-3.jpg” parallax=”on” min_height=”600px” min_height_tablet=”auto” min_height_phone=”auto” min_height_last_edited=”on|tablet” height=”100vh” height_tablet=”550px” height_phone=”400px” height_last_edited=”on|phone” max_height=”1000px” max_height_tablet=”1000px” max_height_phone=”1000px” max_height_last_edited=”on|tablet” background_last_edited=”on|tablet” parallax_tablet=”off” background_position_phone=”center_left” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_fullwidth_image][\/et_pb_section][et_pb_section fb_built=”1″ custom_padding_last_edited=”on|phone” admin_label=”Artikel\/text 1″ _builder_version=”4.25.1″ _module_preset=”default” background_color=”#FFFFFF” custom_padding=”10px||50px||false|false” custom_padding_tablet=”10px||50px||false|false” custom_padding_phone=”10px||40px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row custom_padding_last_edited=”off|phone” _builder_version=”4.25.0″ _module_preset=”default” background_enable_color=”off” width_tablet=”80%” width_phone=”90%” width_last_edited=”on|phone” max_width=”640px” max_width_last_edited=”off|desktop” module_alignment=”center” custom_margin=”||||false|false” custom_padding=”0px|0px|0px|0px|false|true” custom_padding_tablet=”|60px||60px|true|true” custom_padding_phone=”|30px||30px|true|true” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.25.1″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#757575″ text_font_size=”16px” text_line_height=”1.3em” width_phone=”85%” width_last_edited=”off|phone” max_width_phone=”90%” max_width_last_edited=”off|phone” module_alignment=”center” custom_margin=”0px||27px||false|false” custom_padding=”0px||0px||false|false” custom_padding_tablet=”5px||20px||false|false” custom_padding_phone=”5px||15px||false|false” custom_padding_last_edited=”off|desktop” locked=”off” global_colors_info=”{}” width__hover_enabled=”off|desktop” theme_builder_area=”post_content”]<\/p>\n
Foto: My Matson<\/p>\n
[\/et_pb_text][et_pb_text _builder_version=”4.25.0″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#141414″ text_font_size=”18px” text_line_height=”1.5em” header_font_size=”24px” header_2_font=”Siri Expressen||||||||” header_2_text_color=”#141414″ custom_margin=”0px||0px||true|false” custom_padding=”0px||0px||true|false” header_2_font_size_tablet=”” header_2_font_size_phone=”23px” header_2_font_size_last_edited=”on|phone” border_color_bottom=”rgba(0,0,0,0.15)” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n
\u201cJag har alltid sagt vad jag tycker\u201d<\/h2>\n
I b\u00f6rjan ville hon inte alls prata om ALS. Hon ville inte f\u00f6rknippas enbart med sjukdomen, hon var ju Petra som \u00e4lskade att laga mat och resa till varmare l\u00e4nder, vandra och spela paddel. Men ju l\u00e4ngre tiden gick, m\u00e4rkte hon hur lite sjukdomen uppm\u00e4rksammades och hur viktigt det var att prata om den.<\/p>\n
\u2013 Jag k\u00e4nner hur jag f\u00f6rs\u00e4mras och tappar funktioner vecka f\u00f6r vecka, men jag har fortfarande kvar r\u00f6rlighet och kan prata. Och vem \u00e4r jag om jag inte tr\u00e4der fram d\u00e5? Jag har alltid sagt vad jag tycker, och kan jag g\u00f6ra n\u00e5got nu ska jag g\u00f6ra det. Ut\u00f6ver de k\u00e4ndisar som tr\u00e4tt fram, beh\u00f6vs det mer \u201dvanlisar\u201d som jag.<\/p>\n
[\/et_pb_text][et_pb_text _builder_version=”4.25.0″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#757575″ text_font_size=”16px” text_line_height=”1.5em” header_font_size=”24px” header_2_font=”Siri Expressen||||||||” header_2_text_color=”#141414″ header_2_font_size=”44px” text_orientation=”center” custom_margin=”27px||0px||false|false” custom_padding=”0px||0px||true|false” header_2_font_size_tablet=”42px” header_2_font_size_phone=”34px” header_2_font_size_last_edited=”on|phone” border_color_bottom=”rgba(0,0,0,0.15)” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n
400 \u2013 ungef\u00e4r s\u00e5 m\u00e5nga insjuknar varje \u00e5r i ALS i Sverige.<\/h2>\n
K\u00e4lla: forskningsrapport av bland andra Caroline Ingre.<\/em><\/p>\n[\/et_pb_text][et_pb_image src=”https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-content\/uploads\/2024\/05\/hf-petra-5.jpg” title_text=”hf-petra-5″ _builder_version=”4.25.1″ _module_preset=”default” custom_margin=”27px||10px||false|false” custom_padding=”0px||0px||true|false” animation_style=”fade” border_radii=”on|16px|16px|16px|16px” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_image][et_pb_text _builder_version=”4.25.1″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#757575″ text_font_size=”16px” text_line_height=”1.3em” width_phone=”85%” width_last_edited=”off|phone” max_width_phone=”90%” max_width_last_edited=”off|phone” module_alignment=”center” custom_margin=”0px||27px||false|false” custom_padding=”0px||0px||false|false” custom_padding_tablet=”5px||20px||false|false” custom_padding_phone=”5px||15px||false|false” custom_padding_last_edited=”off|desktop” locked=”off” global_colors_info=”{}” width__hover_enabled=”off|desktop” theme_builder_area=”post_content”]<\/p>\n
Foto: My Matson<\/p>\n
[\/et_pb_text][et_pb_text _builder_version=”4.25.0″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#141414″ text_font_size=”18px” text_line_height=”1.5em” header_font_size=”24px” header_2_font=”Siri Expressen||||||||” header_2_text_color=”#141414″ custom_margin=”0px||0px||true|false” custom_padding=”0px||0px||true|false” header_2_font_size_tablet=”” header_2_font_size_phone=”23px” header_2_font_size_last_edited=”on|phone” border_color_bottom=”rgba(0,0,0,0.15)” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n
F\u00f6r Petra handlar det inte s\u00e5 mycket om d\u00f6den, utan om livet. Det vardagliga. Hon arbetar fortfarande heltid med rekrytering och hoppas kunna bo kvar i l\u00e4genheten p\u00e5 andra v\u00e5ningen utan hiss. Badbr\u00e4dan som hon skaffat f\u00f6r att sitta p\u00e5 n\u00e4r hon tv\u00e4ttar sig ligger ouppackad under s\u00e4ngen.<\/p>\n
\u2013 Jag vill s\u00e5 g\u00e4rna att allt ska vara som vanligt. Det \u00e4r s\u00e5dant man tar f\u00f6r givet som k\u00e4nns viktigast. Ta en promenad och titta p\u00e5 film eller garva med kompisar. Inte att skriva \u201dbucket lists\u201d och dricka champagne varje dag.<\/p>\n
Men livet \u00e4r \u00e4nd\u00e5 annorlunda. I vardagsrum och sovrum st\u00e5r plastl\u00e5dor och kassar med kl\u00e4der och skor, och annat som hon samlat p\u00e5 sig under \u00e5ren.<\/p>\n
\u2013 Jag st\u00e4dar vinden och g\u00f6r mig av med saker, men det \u00e4r inte s\u00e5 mycket energi kvar n\u00e4r arbetsdagen \u00e4r slut. Samtidigt k\u00e4nns det viktigt att ha ett jobb med tanke p\u00e5 ekonomin \u2013 och jag \u00e4r glad att kunna jobba eftersom det \u00e4r min krok till det vanliga.<\/p>\n
[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ fullwidth=”on” _builder_version=”4.25.0″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_fullwidth_image title_text=”hf-petra-4″ _builder_version=”4.25.0″ _module_preset=”default” background_image=”https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-content\/uploads\/2024\/05\/hf-petra-4.jpg” parallax=”on” min_height=”600px” min_height_tablet=”auto” min_height_phone=”auto” min_height_last_edited=”on|tablet” height=”100vh” height_tablet=”550px” height_phone=”400px” height_last_edited=”on|phone” max_height=”1000px” max_height_tablet=”” max_height_phone=”” max_height_last_edited=”on|tablet” background_last_edited=”on|desktop” parallax_tablet=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_fullwidth_image][\/et_pb_section][et_pb_section fb_built=”1″ custom_padding_last_edited=”on|phone” admin_label=”Artikel\/text 1″ _builder_version=”4.25.1″ _module_preset=”default” background_color=”#FFFFFF” custom_padding=”10px||50px||false|false” custom_padding_tablet=”10px||50px||false|false” custom_padding_phone=”10px||40px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row custom_padding_last_edited=”off|phone” _builder_version=”4.25.0″ _module_preset=”default” background_enable_color=”off” width_tablet=”80%” width_phone=”90%” width_last_edited=”on|phone” max_width=”640px” max_width_last_edited=”off|desktop” module_alignment=”center” custom_margin=”||||false|false” custom_padding=”0px|0px|0px|0px|false|true” custom_padding_tablet=”|60px||60px|true|true” custom_padding_phone=”|30px||30px|true|true” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.25.1″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#757575″ text_font_size=”16px” text_line_height=”1.3em” width_phone=”85%” width_last_edited=”off|phone” max_width_phone=”90%” max_width_last_edited=”off|phone” module_alignment=”center” custom_margin=”0px||27px||false|false” custom_padding=”0px||0px||false|false” custom_padding_tablet=”5px||20px||false|false” custom_padding_phone=”5px||15px||false|false” custom_padding_last_edited=”off|desktop” locked=”off” global_colors_info=”{}” width__hover_enabled=”off|desktop” theme_builder_area=”post_content”]<\/p>\n
Foto: My Matson<\/p>\n
[\/et_pb_text][et_pb_text _builder_version=”4.25.0″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#141414″ text_font_size=”18px” text_line_height=”1.5em” header_font_size=”24px” header_2_font=”Siri Expressen||||||||” header_2_text_color=”#141414″ custom_margin=”0px||0px||true|false” custom_padding=”0px||0px||true|false” header_2_font_size_tablet=”” header_2_font_size_phone=”23px” header_2_font_size_last_edited=”on|phone” border_color_bottom=”rgba(0,0,0,0.15)” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n
\u201cMin st\u00f6rsta r\u00e4dsla \u00e4r det ekonomiska\u201d<\/h2>\n
Ut\u00f6ver att hon ska tr\u00e4ffa sin l\u00e4kare en g\u00e5ng var fj\u00e4rde m\u00e5nad har hon kontakt med en sjuksk\u00f6terska och ett par logopeder som ger henne olika andnings\u00f6vningar. Men fr\u00e4msta st\u00f6det \u00e4r det egna n\u00e4tverket: den n\u00e4rmaste familjen, v\u00e4nner och kolleger.<\/p>\n
Petra pekar p\u00e5 tv\u00e5 halsband som ligger p\u00e5 k\u00f6ksbordet. Hon har slutat att anv\u00e4nda dem eftersom hennes fingrar inte l\u00e4ngre klarar att kn\u00e4ppa dem.<\/p>\n
\u2013 Ovissheten \u00e4r j\u00e4ttel\u00e4skig. F\u00f6rs\u00e4mringen kommer gradvis och jag t\u00e4nker ibland att det kanske \u00e4r sista g\u00e5ngen jag g\u00f6r vissa saker, som att \u00e5ka till Palma med en kompis eller g\u00e5 i h\u00f6gklackat. Det kan vara banala saker, men \u00e4r en enorm sorg.<\/p>\n
\u2013 Kanske blir det hemtj\u00e4nst eller LSS (lagen om st\u00f6d och service till vissa funktionshindrade). Men jag orkar inte g\u00e5 in i det, jag \u00e4r inte d\u00e4r \u00e4n. Min st\u00f6rsta r\u00e4dsla \u00e4r det ekonomiska, att bli sjukskriven och ha kontakt med F\u00f6rs\u00e4kringskassan och bevisa att jag inte kan g\u00e5 eller beh\u00f6ver assistenter. Det \u00e4r stor skillnad p\u00e5 att vara sjuk om man har mycket pengar eller mindre.<\/p>\n
[\/et_pb_text][et_pb_image src=”https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-content\/uploads\/2024\/05\/hf-petra-6.jpg” title_text=”hf-petra-6″ _builder_version=”4.25.1″ _module_preset=”default” custom_margin=”27px||10px||false|false” custom_padding=”0px||0px||true|false” animation_style=”fade” border_radii=”on|16px|16px|16px|16px” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_image][et_pb_text _builder_version=”4.25.1″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#757575″ text_font_size=”16px” text_line_height=”1.3em” width_phone=”85%” width_last_edited=”off|phone” max_width_phone=”90%” max_width_last_edited=”off|phone” module_alignment=”center” custom_margin=”0px||27px||false|false” custom_padding=”0px||0px||false|false” custom_padding_tablet=”5px||20px||false|false” custom_padding_phone=”5px||15px||false|false” custom_padding_last_edited=”off|desktop” locked=”off” global_colors_info=”{}” width__hover_enabled=”off|desktop” theme_builder_area=”post_content”]<\/p>\n
Foto: My Matson<\/p>\n
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Petra betonar att det \u00e4r viktigt f\u00f6r henne att inte bli arg eller tycka att det \u00e4r or\u00e4ttvist. Det \u00e4r s\u00e5 h\u00e4r det \u00e4r. Hon ska f\u00f6rs\u00f6ka f\u00f6rlika sig och bara glida med, s\u00e5 f\u00e5r hon se.<\/p>\n
\u2013 Jag har alltid sagt att jag inte vill bli ett v\u00e5rdpaket och sj\u00e4lv f\u00e5 best\u00e4mma n\u00e4r jag vill g\u00f6ra slut p\u00e5 det h\u00e4r. Men vem vet hur man kommer att k\u00e4nna l\u00e4ngre fram?<\/p>\n
Tills vidare \u00e4r hon fortsatt positiv. \u00c4ven om sorgen finns d\u00e4r. Hon tar sina bromsmediciner, deltar i forskningsstudier och hoppas att man ska kunna stoppa sjukdomen inom \u00f6versk\u00e5dlig tid.<\/p>\n
\u2013 Jag t\u00e4nker mycket p\u00e5 att det faktiskt kan ske mirakel.<\/p>\n
EXTERN L\u00c4NK: St\u00f6d forskningen om ALS och andra av hj\u00e4rnans sjukdomar och diagnoser. Bli m\u00e5nadsgivare hos Hj\u00e4rnfonden.<\/strong><\/a><\/p>\n[\/et_pb_text][et_pb_text module_class=”fakta” _builder_version=”4.25.0″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#141414″ text_font_size=”18px” text_line_height=”1.5em” header_font_size=”24px” header_2_font=”Siri Expressen||||||||” header_2_text_color=”#141414″ custom_margin=”27px||0px||false|false” custom_padding=”16px|16px|16px|16px|true|true” header_2_font_size_tablet=”” header_2_font_size_phone=”23px” header_2_font_size_last_edited=”on|phone” border_width_all=”1px” border_color_all=”#ebebeb” border_color_bottom=”rgba(0,0,0,0.15)” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n
Vad \u00e4r ALS?<\/h3>\n
ALS (amyotrofisk lateralskleros) \u00e4r namnet p\u00e5 en grupp neurodegenerativa sjukdomar d\u00e4r nervceller i hj\u00e4rnan, hj\u00e4rnstammen och ryggm\u00e4rgen d\u00f6r. Det leder i sin tur till muskelf\u00f6rtvining och f\u00f6rlamning. De flesta som f\u00e5r ALS insjuknar mellan 50\u201370 \u00e5rs \u00e5lder. Man kan i dag inte bli frisk fr\u00e5n ALS, men det finns l\u00e4kemedel som bromsar sjukdomsf\u00f6rloppet n\u00e5got och som kan lindra vissa symtom. Forskning p\u00e5g\u00e5r, men \u00e4nnu \u00e5terst\u00e5r mycket f\u00f6r att l\u00f6sa g\u00e5tan med ALS.<\/p>\n
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ALS-sjuka Petra: \u201dJag t\u00e4nker mycket p\u00e5 att det faktiskt kan ske mirakel\u201dFoto: My MatsonL\u00e4karnas besked var det som Petra Sedlinger, 58, fruktat allra mest \u2013 ALS. \u00c4ven om hon hade haft det p\u00e5 k\u00e4nn efter m\u00e5nader av googlande.\u2013 De fr\u00e5gade vad jag sj\u00e4lv trodde att det var. Sedan fick jag g\u00e5 hem med ett kuvert […]<\/p>\n","protected":false},"author":1,"featured_media":761,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-693","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-okategoriserade"],"_links":{"self":[{"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/posts\/693","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/comments?post=693"}],"version-history":[{"count":48,"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/posts\/693\/revisions"}],"predecessor-version":[{"id":858,"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/posts\/693\/revisions\/858"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/media\/761"}],"wp:attachment":[{"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/media?parent=693"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/categories?post=693"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/tags?post=693"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}