{"id":658,"date":"2023-06-16T15:10:00","date_gmt":"2023-06-16T13:10:00","guid":{"rendered":"https:\/\/kampanj.expressen.se\/hjarnfonden\/?p=658"},"modified":"2023-10-23T13:42:10","modified_gmt":"2023-10-23T11:42:10","slug":"als-sjuka-victoria-24-jag-kan-bara-vanta-pa-en-ny-bromsmedicin","status":"publish","type":"post","link":"https:\/\/kampanj.expressen.se\/hjarnfonden\/als-sjuka-victoria-24-jag-kan-bara-vanta-pa-en-ny-bromsmedicin\/","title":{"rendered":"ALS-sjuka Victoria, 24: \u201cJag kan bara v\u00e4nta p\u00e5 en ny bromsmedicin\u201d"},"content":{"rendered":"\n[et_pb_section fb_built=”1″ disabled_on=”off|off|off” _builder_version=”4.21.0″ _module_preset=”default” use_background_color_gradient=”on” background_color_gradient_stops=”rgba(0,0,0,0) 31%|rgba(0,0,0,0.47) 100%” background_color_gradient_overlays_image=”on” background_color_gradient_start=”rgba(0,0,0,0)” background_color_gradient_start_position=”31%” background_color_gradient_end=”rgba(0,0,0,0.65)” background_image=”https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-content\/uploads\/2023\/06\/hf-victoria-1.jpg” background_enable_video_mp4=”off” background_video_width=”100%” min_height=”700px” min_height_tablet=”500px” min_height_phone=”480px” min_height_last_edited=”on|phone” height=”100vh” background_last_edited=”off|phone” background_image_phone=”https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-content\/uploads\/2023\/06\/hf-als-caroline-topp.jpg” background_enable_image_phone=”on” background_position_phone=”center” background_enable_video_mp4_phone=”off” global_colors_info=”{}” theme_builder_area=”et_body_layout”][et_pb_row use_custom_gutter=”on” gutter_width=”4″ _builder_version=”4.19.0″ _module_preset=”default” positioning=”absolute” position_origin_a=”bottom_center” position_origin_r=”bottom_right” vertical_offset=”20px” vertical_offset_tablet=”” vertical_offset_phone=”2rem” vertical_offset_last_edited=”on|desktop” width_tablet=”” width_phone=”90%” width_last_edited=”on|phone” custom_padding=”||20px||false|false” locked=”off” global_colors_info=”{}” width__hover_enabled=”off|desktop” theme_builder_area=”et_body_layout”][et_pb_column type=”4_4″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”et_body_layout”][et_pb_text content_tablet=”

D\u00e4rf\u00f6r p\u00e5verkar k\u00f6net
n\u00e4r du f\u00e5r din diagnos<\/h1>” content_phone=”

D\u00e4rf\u00f6r p\u00e5verkar k\u00f6net n\u00e4r du f\u00e5r din diagnos<\/h1>” content_last_edited=”off|desktop” _builder_version=”4.21.0″ _module_preset=”default” header_font=”Siri Expressen|||on|||||” header_text_align=”center” header_text_color=”#FFFFFF” header_font_size=”50px” width=”780px” width_tablet=”100%” width_phone=”100%” width_last_edited=”on|phone” module_alignment=”center” custom_margin=”||19px|||” custom_padding=”||||false|false” header_text_align_tablet=”” header_text_align_phone=”” header_text_align_last_edited=”on|phone” header_font_size_tablet=”46px” header_font_size_phone=”30px” header_font_size_last_edited=”on|phone” header_text_shadow_style=”preset3″ header_text_shadow_blur_strength=”0.4em” header_text_shadow_color=”rgba(0,0,0,0.3)” global_colors_info=”{}” theme_builder_area=”et_body_layout”]

ALS-sjuka Victoria, 24: \u201cJag kan bara v\u00e4nta p\u00e5 en ny bromsmedicin\u201d<\/h1>[\/et_pb_text][et_pb_button button_text=”%22″ button_alignment=”center” module_class=”radioknapp” _builder_version=”4.21.0″ _module_preset=”default” custom_button=”on” button_text_size=”18px” button_border_width=”1.5px” button_border_radius=”50%” button_font=”Elegant Icons||||||||” button_use_icon=”off” background_layout=”dark” custom_margin=”||||false|false” custom_padding=”|12px||12px|false|true” global_colors_info=”{}” theme_builder_area=”et_body_layout”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ custom_padding_last_edited=”on|tablet” admin_label=”Artikel\/text 1″ _builder_version=”4.19.0″ _module_preset=”default” background_color=”#FFFFFF” custom_padding=”50px||50px||true|false” custom_padding_tablet=”50px||50px||true|false” custom_padding_phone=”40px||40px||true|false” global_colors_info=”{}” theme_builder_area=”et_body_layout”][et_pb_row custom_padding_last_edited=”on|phone” _builder_version=”4.16″ _module_preset=”default” background_enable_color=”off” width_tablet=”” width_phone=”100%” width_last_edited=”on|phone” max_width=”900px” max_width_tablet=”” max_width_phone=”” max_width_last_edited=”on|tablet” module_alignment=”center” custom_padding=”0px|150px|19px|150px|false|true” custom_padding_tablet=”|60px||60px|true|true” custom_padding_phone=”|30px||30px|true|true” global_colors_info=”{}” theme_builder_area=”et_body_layout”][et_pb_column type=”4_4″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”et_body_layout”][et_pb_text _builder_version=”4.21.0″ _module_preset=”default” text_font=”Arial|600|||||||” text_text_color=”#222222″ text_font_size=”18px” text_line_height=”1.5em” header_3_font=”di-benton-bold||||||||” header_3_text_color=”#222222″ header_3_font_size=”19px” header_3_line_height=”1.5em” custom_padding=”||22px|||” custom_padding_tablet=”||22px||false|false” custom_padding_phone=”” custom_padding_last_edited=”on|tablet” text_font_size_tablet=”” text_font_size_phone=”18px” text_font_size_last_edited=”on|phone” text_line_height_tablet=”” text_line_height_phone=”” text_line_height_last_edited=”on|desktop” header_3_font_size_tablet=”” header_3_font_size_phone=”18px” header_3_font_size_last_edited=”on|phone” border_width_bottom=”1px” border_color_bottom=”rgba(0,0,0,0.15)” global_colors_info=”{}” theme_builder_area=”et_body_layout”]

Victoria Sandsjoe fick ALS som 21-\u00e5ring och \u00e4r en av de yngsta i Sverige med diagnosen. Nu vill hon sprida kunskap om sjukdomen och hoppas att fler vill st\u00f6tta forskningen om ALS.
\u2013 N\u00e5gon g\u00e5ng kommer det ett genombrott, s\u00e4ger hon.<\/span><\/p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”3_5,2_5″ use_custom_gutter=”on” gutter_width=”1″ custom_padding_last_edited=”on|phone” _builder_version=”4.19.2″ _module_preset=”default” background_enable_color=”off” width_tablet=”” width_phone=”100%” width_last_edited=”on|phone” max_width=”900px” max_width_tablet=”” max_width_phone=”” max_width_last_edited=”on|tablet” module_alignment=”center” custom_padding=”19px|150px|0px|150px|false|true” custom_padding_tablet=”|60px||60px|false|true” custom_padding_phone=”19px|30px|0px|30px|false|true” global_colors_info=”{}” theme_builder_area=”et_body_layout”][et_pb_column type=”3_5″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”et_body_layout”][et_pb_text _builder_version=”4.21.0″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#222222″ text_font_size=”18px” text_line_height=”1.5em” header_font_size=”24px” header_2_font=”Siri-Expressen||||||||” header_2_text_color=”#222222″ custom_padding=”|20px|||false|false” custom_padding_tablet=”|0px|||false|false” custom_padding_phone=”” custom_padding_last_edited=”on|desktop” header_2_font_size_tablet=”” header_2_font_size_phone=”23px” header_2_font_size_last_edited=”on|phone” global_colors_info=”{}” theme_builder_area=”et_body_layout”]

Det b\u00f6rjade med ryckningar i h\u00f6ger tumme. Sedan kom muskelkramperna. Victoria Sandsjoe var bara 20 \u00e5r och en aktiv friidrottare n\u00e4r de f\u00f6rsta symtomen gav sig tillk\u00e4nna.<\/p>\n

\u2013 Det var den varma sommaren 2018 och vi t\u00e4nkte f\u00f6rst att muskelkramperna berodde p\u00e5 v\u00e4tskebrist eftersom Victoria tr\u00e4nade s\u00e5 mycket. Men sedan kom h\u00f6sten och d\u00e5 var det inte varmt l\u00e4ngre, men \u00e4nd\u00e5 tilltog symtomen. D\u00e5 blev det tydligt att det var ett neurologiskt fel, ber\u00e4ttar Lotta Svenneling, Victorias mamma.<\/p>[\/et_pb_text][\/et_pb_column][et_pb_column type=”2_5″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”et_body_layout”][et_pb_image src=”https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-content\/uploads\/2023\/06\/hf-victoria-1×1-1.jpg” title_text=”hf-victoria-1×1″ src_tablet=”https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-content\/uploads\/2023\/06\/hf-victoria-16×9-1.jpg” src_phone=”https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-content\/uploads\/2023\/06\/hf-victoria-1×1-1.jpg” src_last_edited=”on|phone” _builder_version=”4.21.0″ _module_preset=”default” custom_margin=”7px||0px||false|false” custom_margin_tablet=”20px||||false|false” custom_margin_phone=”20px||||false|false” custom_margin_last_edited=”on|phone” custom_padding=”||0px||false|false” animation_style=”fade” global_colors_info=”{}” theme_builder_area=”et_body_layout”][\/et_pb_image][et_pb_text _builder_version=”4.21.0″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#969696″ text_font_size=”15px” text_line_height=”1.3em” width_phone=”85%” width_last_edited=”off|phone” max_width_phone=”90%” max_width_last_edited=”off|phone” module_alignment=”center” custom_padding=”5px||||false|false” custom_padding_tablet=”5px||20px||false|false” custom_padding_phone=”5px||15px||false|false” custom_padding_last_edited=”on|desktop” locked=”off” global_colors_info=”{}” width__hover_enabled=”off|desktop” theme_builder_area=”et_body_layout”]

Victoria Sandsjoe, fick ALS som 21-\u00e5ring och \u00e4r en av de yngsta i Sverige med diagnosen.<\/p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row use_custom_gutter=”on” gutter_width=”1″ custom_padding_last_edited=”on|phone” _builder_version=”4.19.2″ _module_preset=”default” background_enable_color=”off” width_tablet=”” width_phone=”100%” width_last_edited=”on|phone” max_width=”900px” max_width_tablet=”” max_width_phone=”” max_width_last_edited=”on|tablet” module_alignment=”center” custom_padding=”19px|150px|0px|150px|false|true” custom_padding_tablet=”|60px||60px|false|true” custom_padding_phone=”19px|30px|0px|30px|false|true” global_colors_info=”{}” theme_builder_area=”et_body_layout”][et_pb_column type=”4_4″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”et_body_layout”][et_pb_text _builder_version=”4.21.0″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#222222″ text_font_size=”18px” text_line_height=”1.5em” header_font_size=”24px” header_2_font=”Siri-Expressen||||||||” header_2_text_color=”#222222″ custom_padding=”|20px|||false|false” custom_padding_tablet=”|0px|||false|false” custom_padding_phone=”” custom_padding_last_edited=”on|desktop” header_2_font_size_tablet=”” header_2_font_size_phone=”23px” header_2_font_size_last_edited=”on|phone” global_colors_info=”{}” theme_builder_area=”et_body_layout”]EXTERN L\u00c4NK: L\u00e4s mer om ALS<\/strong><\/a>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.19.0″ _module_preset=”default” custom_padding=”0px||0px||true|false” global_colors_info=”{}” theme_builder_area=”et_body_layout”][et_pb_row _builder_version=”4.19.2″ _module_preset=”default” width=”1080px” width_tablet=”90%” width_phone=”100%” width_last_edited=”on|desktop” custom_padding=”0px||0px||true|false” animation_style=”fade” global_colors_info=”{}” theme_builder_area=”et_body_layout”][et_pb_column type=”4_4″ _builder_version=”4.19.0″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”et_body_layout”][et_pb_image src=”https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-content\/uploads\/2023\/06\/hf-victoria-2.jpg” title_text=”hf-victoria-2″ align=”center” _builder_version=”4.21.0″ _module_preset=”default” custom_margin=”||0px||false|false” global_colors_info=”{}” theme_builder_area=”et_body_layout”][\/et_pb_image][et_pb_text disabled_on=”on|on|on” _builder_version=”4.21.0″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#969696″ text_font_size=”15px” text_line_height=”1.3em” width_phone=”85%” width_last_edited=”off|phone” max_width_phone=”90%” max_width_last_edited=”off|phone” module_alignment=”center” custom_padding=”5px||||false|false” custom_padding_tablet=”5px||20px||false|false” custom_padding_phone=”5px||15px||false|false” custom_padding_last_edited=”on|desktop” disabled=”on” locked=”off” global_colors_info=”{}” width__hover_enabled=”off|desktop” theme_builder_area=”et_body_layout”]

Bildtext<\/p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ custom_padding_last_edited=”on|tablet” admin_label=”Artikel\/text 1″ _builder_version=”4.19.0″ _module_preset=”default” background_color=”#FFFFFF” custom_padding=”50px||50px||true|false” custom_padding_tablet=”50px||50px||true|false” custom_padding_phone=”40px||40px||true|false” global_colors_info=”{}” theme_builder_area=”et_body_layout”][et_pb_row custom_padding_last_edited=”on|phone” _builder_version=”4.19.0″ _module_preset=”default” background_enable_color=”off” width_tablet=”” width_phone=”100%” width_last_edited=”on|phone” max_width=”900px” max_width_tablet=”” max_width_phone=”” max_width_last_edited=”on|tablet” module_alignment=”center” custom_margin=”|||auto|false|false” custom_padding=”0px|150px|0px|150px|false|true” custom_padding_tablet=”|60px||60px|true|true” custom_padding_phone=”|30px||30px|true|true” global_colors_info=”{}” theme_builder_area=”et_body_layout”][et_pb_column type=”4_4″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”et_body_layout”][et_pb_text _builder_version=”4.21.0″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#222222″ text_font_size=”18px” text_line_height=”1.5em” header_font_size=”24px” header_2_font=”Siri Expressen||||||||” header_2_text_color=”#222222″ header_2_font_size_tablet=”” header_2_font_size_phone=”23px” header_2_font_size_last_edited=”on|phone” global_colors_info=”{}” theme_builder_area=”et_body_layout”]

\u201cJag f\u00f6rstod tidigt att det var ALS\u201d<\/h2>\n

Victoria skickade en egenv\u00e5rdsremiss till neurologmottagningen i Karlstad och fick en kallelse f\u00f6r bes\u00f6k i mars 2019.<\/p>\n

\u2013 Till att b\u00f6rja med trodde l\u00e4karna att jag bara var stressad, men d\u00e5 fick vi st\u00e5 p\u00e5 oss. Jag k\u00e4nner ju min kropp och visste att det h\u00e4r var n\u00e5got fysiskt.<\/p>\n

Efter m\u00e5nader av olika tester kom slutligen beskedet: Victoria hade den obotliga sjukdomen ALS, som inneb\u00e4r att nervceller i hj\u00e4rnan, hj\u00e4rnstammen och ryggm\u00e4rgen d\u00f6r. Det leder i sin tur till muskelf\u00f6rtvining och f\u00f6rlamning. De flesta \u00e4r runt 60 \u00e5r n\u00e4r de insjuknar, och bara tre procent \u00e4r under 40 \u00e5r.<\/p>\n

\u2013 Eftersom jag hade googlat mina symtom f\u00f6rstod jag redan tidigt att det var ALS, men jag hoppades s\u00e5klart in i det sista att det skulle vara n\u00e5got annat, s\u00e4ger Victoria.<\/p>[\/et_pb_text][et_pb_image src=”https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-content\/uploads\/2023\/06\/hf-victoria-4.jpg” title_text=”hf-victoria-4″ _builder_version=”4.21.0″ _module_preset=”default” custom_margin=”30px||30px||true|false” custom_padding=”0px||0px||true|false” animation_style=”fade” locked=”off” global_colors_info=”{}” theme_builder_area=”et_body_layout”][\/et_pb_image][et_pb_text _builder_version=”4.21.0″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#222222″ text_font_size=”18px” text_line_height=”1.5em” header_font_size=”24px” header_2_font=”Siri Expressen||||||||” header_2_text_color=”#222222″ header_2_font_size_tablet=”” header_2_font_size_phone=”23px” header_2_font_size_last_edited=”on|phone” global_colors_info=”{}” theme_builder_area=”et_body_layout”]

Levde som i en dimma<\/h2>\n

Victoria beskriver det som att hon och familjen levde i n\u00e5got av en dimma den f\u00f6rsta tiden efter beskedet, men ber\u00e4ttar att de \u00e4nd\u00e5 snabbt kom ur den.<\/p>\n

\u2013 Tv\u00e5 veckor senare var jag tillbaka p\u00e5 universitetet och fortsatte min civilekonomutbildning. Vardagen rullade p\u00e5 igen och jag f\u00f6rs\u00f6kte leva som vanligt, trots att jag s\u00e5klart hade mycket oro och \u00e4ngslan.<\/p>\n

\u2013 Jag var tvungen att l\u00e4gga tr\u00e4ningen \u00e5t sidan, men jag fortsatte att komma till hallen f\u00f6r den sociala biten, \u00e4ven om jag bara kunde vara med och stretcha, till\u00e4gger hon.<\/p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.19.0″ _module_preset=”default” custom_padding=”0px||0px||true|false” global_colors_info=”{}” theme_builder_area=”et_body_layout”][et_pb_row _builder_version=”4.19.2″ _module_preset=”default” width=”1080px” width_tablet=”90%” width_phone=”100%” width_last_edited=”on|desktop” custom_padding=”0px||0px||true|false” animation_style=”fade” global_colors_info=”{}” theme_builder_area=”et_body_layout”][et_pb_column type=”4_4″ _builder_version=”4.19.0″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”et_body_layout”][et_pb_image src=”https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-content\/uploads\/2023\/06\/hf-victoria-3.jpg” title_text=”hf-victoria-3″ align=”center” _builder_version=”4.21.0″ _module_preset=”default” custom_margin=”||0px||false|false” global_colors_info=”{}” theme_builder_area=”et_body_layout”][\/et_pb_image][et_pb_text disabled_on=”on|on|on” _builder_version=”4.21.0″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#969696″ text_font_size=”15px” text_line_height=”1.3em” width_phone=”85%” width_last_edited=”off|phone” max_width_phone=”90%” max_width_last_edited=”off|phone” module_alignment=”center” custom_padding=”5px||||false|false” custom_padding_tablet=”5px||20px||false|false” custom_padding_phone=”5px||15px||false|false” custom_padding_last_edited=”on|desktop” disabled=”on” locked=”off” global_colors_info=”{}” width__hover_enabled=”off|desktop” theme_builder_area=”et_body_layout”]

Bildtext<\/p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ custom_padding_last_edited=”on|tablet” admin_label=”Artikel\/text 1″ _builder_version=”4.19.0″ _module_preset=”default” background_color=”#FFFFFF” custom_padding=”50px||50px||true|false” custom_padding_tablet=”50px||50px||true|false” custom_padding_phone=”40px||40px||true|false” global_colors_info=”{}” theme_builder_area=”et_body_layout”][et_pb_row custom_padding_last_edited=”on|phone” _builder_version=”4.19.0″ _module_preset=”default” background_enable_color=”off” width_tablet=”” width_phone=”100%” width_last_edited=”on|phone” max_width=”900px” max_width_tablet=”” max_width_phone=”” max_width_last_edited=”on|tablet” module_alignment=”center” custom_margin=”|||auto|false|false” custom_padding=”0px|150px|0px|150px|false|true” custom_padding_tablet=”|60px||60px|true|true” custom_padding_phone=”|30px||30px|true|true” global_colors_info=”{}” theme_builder_area=”et_body_layout”][et_pb_column type=”4_4″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”et_body_layout”][et_pb_text _builder_version=”4.21.0″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#222222″ text_font_size=”18px” text_line_height=”1.5em” header_font_size=”24px” header_2_font=”Siri Expressen||||||||” header_2_text_color=”#222222″ custom_margin=”||25px||false|false” header_2_font_size_tablet=”” header_2_font_size_phone=”23px” header_2_font_size_last_edited=”on|phone” global_colors_info=”{}” theme_builder_area=”et_body_layout”]

Hoppas p\u00e5 nya bromsmediciner<\/h2>\n

Sedan i februari i \u00e5r \u00e4r Lotta och Victorias pojkv\u00e4n Markus hennes personliga assistenter p\u00e5 heltid. \u00c4ven Victorias pappa och styvpappa st\u00f6ttar upp n\u00e4r det beh\u00f6vs.<\/p>\n

\u2013 Vi har st\u00f6ttat och hj\u00e4lpt till under alla de h\u00e4r \u00e5ren, men p\u00e5 senare tid har hj\u00e4lpbehovet blivit mycket st\u00f6rre, och det var Victorias stora \u00f6nskan att vi skulle forts\u00e4tta att ha kvar den personliga assistansen inom familjen. Det fungerar v\u00e4ldigt bra och g\u00f6r att vi f\u00e5r mycket tid tillsammans, s\u00e4ger Lotta.<\/p>\n

Fr\u00e5n att ha kunnat g\u00e5 med hj\u00e4lp av rullator anv\u00e4nder Victoria idag en elrullstol f\u00f6r att ta sig fram. Sjukdomen har \u00e4ven b\u00f6rjat p\u00e5verka talet.<\/p>\n

\u2013 Jag tar den bromsmedicin som finns, men den kom ut p\u00e5 90-talet och hj\u00e4lper inte alla, s\u00e5 den ger inget direkt hopp. Nu g\u00f6r de en studie p\u00e5 en ny bromsmedicin och den vill jag s\u00e5klart g\u00e4rna komma \u00f6ver, men det \u00e4r h\u00e5rda kriterier f\u00f6r att vara med i en forskningsstudie. Bland annat f\u00e5r man inte ha haft sjukdomen i mer \u00e4n tv\u00e5 \u00e5r.<\/p>\n

N\u00e4r studien startade hade Victoria haft sjukdomen i tv\u00e5 \u00e5r och en m\u00e5nad och kvalade d\u00e4rf\u00f6r inte in som kandidat.<\/p>\n

\u2013 Det enda jag kan g\u00f6ra \u00e4r att v\u00e4nta p\u00e5 att den nya medicinen kommer ut p\u00e5 marknaden. Men eftersom mycket hinner h\u00e4nda p\u00e5 ett par \u00e5r vill jag ju helst inte v\u00e4nta s\u00e5 l\u00e4nge.<\/p>[\/et_pb_text][et_pb_text _builder_version=”4.21.0″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#222222″ text_font_size=”18px” text_line_height=”1.5em” header_font_size=”24px” header_2_font=”Siri Expressen||||||||” header_2_text_color=”#222222″ header_2_font_size_tablet=”” header_2_font_size_phone=”23px” header_2_font_size_last_edited=”on|phone” global_colors_info=”{}” theme_builder_area=”et_body_layout”]

Vill bidra till forskningen<\/h2>\n

Lotta ville starta en insamling till forskningen om ALS redan i b\u00f6rjan n\u00e4r Victoria blev sjuk, men det var hon inte redo f\u00f6r d\u00e5.<\/p>\n

\u2013 Jag var fortfarande s\u00e5 pass frisk och ville inte bli ihopkopplad med sjukdomen, men nu \u00e4r det s\u00e5 tydligt att jag \u00e4r sjuk \u2013 och d\u00e5 vill jag vara med och bidra p\u00e5 n\u00e5got s\u00e4tt.<\/p>\n

Victoria och Lotta startade en insamling till forskningen om ALS via Hj\u00e4rnfonden i vintras som redan \u00e4r uppe i \u00f6ver 400 000 kronor.<\/p>\n

\u2013 Forskarna hinner kanske inte komma med n\u00e5got som hj\u00e4lper mig, men f\u00f6rhoppningsvis kan det hj\u00e4lpa n\u00e5gon annan i samma sits, s\u00e4ger Victoria.<\/p>\n

EXTERN L\u00c4NK: St\u00f6d Victorias insamling <\/strong><\/a><\/p>[\/et_pb_text][et_pb_text content_tablet=”

%22%22<\/p>\n

Sverigelotten<\/h2>\n

Sverigelotten \u00e4r en skraplott som \u00e4gs av Folkspel, en ideell organisation som har till uppgift att generera pengar till svenskt f\u00f6reningsliv. 100 procent av \u00f6verskottet fr\u00e5n skraplotterna g\u00e5r till Sveriges f\u00f6reningar, klubbar och organisationer. 2020 delade Folkspel ut 232 miljoner kronor till svenskt f\u00f6reningsliv och fr\u00e4mjandet av h\u00e4lsa, integration och respekten f\u00f6r andra.<\/p>\n

2021 \u00e4r det \u00e5ttonde \u00e5ret som Sverigelotten och Br\u00f6stcancerf\u00f6rbundet g\u00f6r en kampanj d\u00e4r f\u00f6r varje rosa Sverigelott som s\u00e4ljs g\u00e5r ett extra \u00f6verskott till kampen mot br\u00f6stcancer. Totalt har den rosa Sverigelotten inbringat 3 994 880 kronor genom \u00e5ren och bara i fjol blev \u00f6verskottet 601 914 kronor.<\/p>\n

Genom att k\u00f6pa en Sverigelott st\u00f6ttar du Br\u00f6stcancerf\u00f6rbundet \u2013 och kampen mot br\u00f6stcancer. Dessutom har du chans att vinna miljoner!<\/p>\n

EXTERN L\u00c4NK: St\u00f6d Br\u00f6stcancerf\u00f6rbundet genom att k\u00f6pa en Sverigelott<\/strong><\/a><\/p>” content_phone=”

%22%22<\/p>\n

Sverigelotten<\/h2>\n

Sverigelotten \u00e4r en skraplott som \u00e4gs av Folkspel, en ideell organisation som har till uppgift att generera pengar till svenskt f\u00f6reningsliv. 100 procent av \u00f6verskottet fr\u00e5n skraplotterna g\u00e5r till Sveriges f\u00f6reningar, klubbar och organisationer. 2020 delade Folkspel ut 232 miljoner kronor till svenskt f\u00f6reningsliv och fr\u00e4mjandet av h\u00e4lsa, integration och respekten f\u00f6r andra.<\/p>\n

2021 \u00e4r det \u00e5ttonde \u00e5ret som Sverigelotten och Br\u00f6stcancerf\u00f6rbundet g\u00f6r en kampanj d\u00e4r f\u00f6r varje rosa Sverigelott som s\u00e4ljs g\u00e5r ett extra \u00f6verskott till kampen mot br\u00f6stcancer. Totalt har den rosa Sverigelotten inbringat 3 994 880 kronor genom \u00e5ren och bara i fjol blev \u00f6verskottet 601 914 kronor.<\/p>\n

Genom att k\u00f6pa en Sverigelott st\u00f6ttar du Br\u00f6stcancerf\u00f6rbundet \u2013 och kampen mot br\u00f6stcancer. Dessutom har du chans att vinna miljoner!<\/p>\n

EXTERN L\u00c4NK: St\u00f6d Br\u00f6stcancerf\u00f6rbundet genom att k\u00f6pa en Sverigelott<\/strong><\/a><\/p>” content_last_edited=”off|desktop” disabled_on=”off|off|off” _builder_version=”4.21.0″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#222222″ text_font_size=”16px” text_line_height=”1.5em” header_font_size=”24px” header_2_font=”Siri Expressen|||on|||||” header_2_text_color=”#222222″ header_2_font_size=”22px” background_color=”RGBA(0,0,0,0)” custom_margin=”30px||||false|false” custom_padding=”15px|15px|15px|15px|true|true” custom_padding_tablet=”25px|25px|25px|25px|true|true” custom_padding_phone=”25px||25px||true|true” custom_padding_last_edited=”on|phone” text_font_size_tablet=”18px” text_font_size_phone=”” text_font_size_last_edited=”on|desktop” header_2_font_size_phone=”23px” header_2_font_size_last_edited=”off|desktop” border_width_all=”1px” border_color_all=”#d8d8d8″ saved_tabs=”all” global_colors_info=”{}” theme_builder_area=”et_body_layout”]

Hj\u00e4rnfonden<\/h2>\n

Hj\u00e4rnfonden arbetar med insamling och finansiering av hj\u00e4rnforskning, samt kunskapsspridning och samh\u00e4llsf\u00f6r\u00e4ndring f\u00f6r att alla hj\u00e4rnor ska n\u00e5 sin fulla potential, fria fr\u00e5n sjukdomar. De senaste 25 \u00e5ren har Hj\u00e4rnfonden finansierat \u00f6ver 1\u00a0400 svenska forskningsprojekt tack vare gener\u00f6sa g\u00e5vor fr\u00e5n privatpersoner, f\u00f6retag och testamenten.<\/p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]\n","protected":false},"excerpt":{"rendered":"

ALS-sjuka Victoria, 24: \u201cJag kan bara v\u00e4nta p\u00e5 en ny bromsmedicin\u201dVictoria Sandsjoe fick ALS som 21-\u00e5ring och \u00e4r en av de yngsta i Sverige med diagnosen. Nu vill hon sprida kunskap om sjukdomen och hoppas att fler vill st\u00f6tta forskningen om ALS.\u2013 N\u00e5gon g\u00e5ng kommer det ett genombrott, s\u00e4ger hon.Det b\u00f6rjade med ryckningar i h\u00f6ger […]<\/p>\n","protected":false},"author":1,"featured_media":518,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-658","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-okategoriserade"],"_links":{"self":[{"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/posts\/658","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/comments?post=658"}],"version-history":[{"count":4,"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/posts\/658\/revisions"}],"predecessor-version":[{"id":670,"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/posts\/658\/revisions\/670"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/media\/518"}],"wp:attachment":[{"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/media?parent=658"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/categories?post=658"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-json\/wp\/v2\/tags?post=658"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}