[et_pb_section fb_built=”1″ disabled_on=”off|off|off” admin_label=”HERO” _builder_version=”4.27.4″ _module_preset=”default” use_background_color_gradient=”on” background_color_gradient_stops=”rgba(0,0,0,0) 20%|rgba(0,0,0,0.3) 100%” background_color_gradient_overlays_image=”on” background_color_gradient_start=”rgba(0,0,0,0)” background_color_gradient_start_position=”31%” background_color_gradient_end=”rgba(0,0,0,0.65)” background_image=”https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-content\/uploads\/2025\/11\/hjarnfonden-victoria-1.jpg” background_enable_video_mp4=”off” background_video_width=”100%” min_height=”650px” min_height_tablet=”500px” min_height_phone=”350px” min_height_last_edited=”on|phone” height=”100vh” height_tablet=”80vh” height_phone=”80vh” height_last_edited=”on|phone” max_height=”1000px” max_height_tablet=”900px” max_height_phone=”600px” max_height_last_edited=”on|tablet” background_last_edited=”off|tablet” background_image_tablet=”https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-content\/uploads\/2025\/09\/hjarnfonden-andreas-topp.jpg” background_image_phone=”https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-content\/uploads\/2025\/09\/hjarnfonden-andreas-topp-m.jpg” background_enable_image_tablet=”on” background_enable_image_phone=”on” background_position_tablet=”center” background_position_phone=”bottom_center” background_horizontal_offset_phone=”26%” background_vertical_offset_phone=”0%” background_enable_video_mp4_phone=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” positioning=”absolute” position_origin_a=”bottom_center” position_origin_r=”bottom_right” vertical_offset=”0px” vertical_offset_phone=”2rem” vertical_offset_last_edited=”off|desktop” width_tablet=”80%” width_phone=”90%” width_last_edited=”on|phone” max_width=”900px” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}” width__hover_enabled=”off|desktop” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text content_tablet=”<\/p>\n
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” content_last_edited=”off|desktop” _builder_version=”4.27.4″ _module_preset=”default” header_font=”Siri Expressen||||||||” header_text_align=”center” header_text_color=”#FFFFFF” header_font_size=”71px” width_tablet=”100%” width_phone=”100%” width_last_edited=”off|desktop” module_alignment=”center” custom_margin=”||0px||false|false” custom_margin_tablet=”||0px||false|false” custom_margin_phone=”||0px||false|false” custom_margin_last_edited=”off|desktop” custom_padding=”||||false|false” header_text_align_last_edited=”off|desktop” header_font_size_tablet=”48px” header_font_size_phone=”36px” header_font_size_last_edited=”on|phone” header_text_shadow_style=”preset3″ header_text_shadow_blur_strength=”0.4em” header_text_shadow_color=”rgba(0,0,0,0.3)” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n
[\/et_pb_text][et_pb_icon font_icon=”3||divi||400″ icon_color=”#FFFFFF” icon_width=”55px” icon_width_tablet=”55px” icon_width_phone=”50px” icon_width_last_edited=”on|phone” _builder_version=”4.25.0″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_icon][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ custom_padding_last_edited=”off|desktop” admin_label=”Artikel\/text 1″ _builder_version=”4.27.4″ _module_preset=”default” background_color=”#FFFFFF” custom_padding=”10px||40px||false|false” custom_padding_tablet=”50px||50px||true|false” custom_padding_phone=”40px||40px||true|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” width=”90%” max_width=”640px” custom_padding=”0px||0px||true|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text module_class=”bildtext” _builder_version=”4.27.4″ _module_preset=”default” text_text_color=”#757575″ text_font_size=”16px” custom_margin=”||27px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n
Foto: My Matson f\u00f6r Hj\u00e4rnfonden<\/p>\n
[\/et_pb_text][et_pb_text module_class=”ingress” _builder_version=”4.27.4″ _module_preset=”default” text_font=”|700|||||||” text_font_size=”20px” custom_margin=”||27px||false|false” text_font_size_tablet=”20px” text_font_size_phone=”19px” text_font_size_last_edited=”on|phone” global_colors_info=”{}” theme_builder_area=”post_content”]Victoria Sandsjoe var bara 21 \u00e5r n\u00e4r hon fick diagnosen ALS. I dag bidrar hon \u2013 tillsammans med Hj\u00e4rnfonden \u2013 till forskning och sprider kunskap om den d\u00f6dliga sjukdomen: \u201dDet h\u00e4r \u00e4r en sjukdom som ingen borde drabbas av\u201d.[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”3_5,2_5″ _builder_version=”4.27.4″ _module_preset=”default” width=”90%” max_width=”640px” custom_margin=”||20px||false|false” custom_padding=”0px||0px||true|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”3_5″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font=”||||||||” custom_margin=”||||false|false” global_colors_info=”{}” theme_builder_area=”post_content”]Det b\u00f6rjade med of\u00f6rklarliga muskelkramper. Sedan kom ryckningarna i ena tummen och problem med koordinationen.<\/p>\n
P\u00e5 den tiden var Victoria Sandsjoe en aktiv friidrottare och tillbringade sin mesta fritid p\u00e5 l\u00f6parbanan.<\/p>\n
\u2013 Jag tr\u00e4nade i stort sett varje dag och m\u00e4rkte p\u00e5 min l\u00f6pning att n\u00e5gonting var fel, ber\u00e4ttar den nu 27-\u00e5riga Victoria.<\/p>\n
Ett halv\u00e5r efter de f\u00f6rsta symtomen fick hon tr\u00e4ffa en l\u00e4kare och sedan tog det ytterligare ett halv\u00e5r att st\u00e4lla diagnosen. Det \u00e4r mycket ovanligt att n\u00e5gon s\u00e5 ung drabbas \u2013 av de 220-250 svenskar som \u00e5rligen f\u00e5r diagnosen ALS \u00e4r bara n\u00e5gra f\u00e5 under 40 \u00e5r.[\/et_pb_text][\/et_pb_column][et_pb_column type=”2_5″ _builder_version=”4.27.4″ _module_preset=”default” animation_style=”slide” animation_direction=”right” animation_duration=”700ms” animation_intensity_slide=”30%” animation_direction_tablet=”center” animation_direction_phone=”center” animation_direction_last_edited=”on|phone” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-content\/uploads\/2025\/11\/hjarnfonden-victoria-2.jpg” title_text=”hjarnfonden-victoria-3″ src_tablet=”https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-content\/uploads\/2025\/11\/hjarnfonden-victoria-3.jpg” src_phone=”https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-content\/uploads\/2025\/11\/hjarnfonden-victoria-3.jpg” src_last_edited=”on|phone” _builder_version=”4.27.4″ _module_preset=”default” custom_margin=”5px||10px||false|false” border_radii=”on|8px|8px|8px|8px” border_radii_tablet=”on|0%|0%|0%|0%” border_radii_phone=”on|0%|0%|0%|0%” border_radii_last_edited=”off|desktop” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_image][et_pb_text module_class=”bildtext” _builder_version=”4.27.4″ _module_preset=”default” text_text_color=”#757575″ text_font_size=”16px” custom_margin=”||||false|false” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n
Victoria Sandsjoe.
Foto: My Matson f\u00f6r Hj\u00e4rnfonden<\/p>\n
[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row custom_padding_last_edited=”off|phone” _builder_version=”4.25.0″ _module_preset=”default” background_enable_color=”off” width_tablet=”80%” width_phone=”90%” width_last_edited=”on|phone” max_width=”640px” max_width_last_edited=”off|desktop” module_alignment=”center” custom_margin=”||||false|false” custom_padding=”0px|0px|0px|0px|false|true” custom_padding_tablet=”|60px||60px|true|true” custom_padding_phone=”|30px||30px|true|true” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font=”||||||||” custom_margin=”||||false|false” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n
Sj\u00e4lv hade hon l\u00e4nge haft sina aningar, och n\u00e4r l\u00e4karna gav det slutgiltiga beskedet blev allt svart. Det finns fortfarande inget botemedel mot ALS, det \u00e4r en sjukdom som oundvikligen leder till d\u00f6den.<\/p>\n
\u2013 N\u00e4r vi satt d\u00e4r med l\u00e4karna och sjuksk\u00f6terskorna och fick beskedet k\u00e4nde jag mig ganska avsk\u00e4rmad, jag minns inte s\u00e5 mycket av den stunden. Men n\u00e4r vi v\u00e4l kom ut till hissen br\u00f6t jag ihop.<\/p>\n
[\/et_pb_text][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font=”||||||||” custom_margin=”22px||22px||true|false” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n
EXTERN L\u00c4NK: L\u00e4s mer om ALS<\/a><\/p>\n [\/et_pb_text][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font=”||||||||” custom_margin=”||||false|false” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n Till en b\u00f6rjan f\u00f6rs\u00f6kte Victoria att leva s\u00e5 vanligt som m\u00f6jligt och trots sin sjukdom fullf\u00f6ljde hon sina universitetsstudier. Hon fortsatte \u00e4ven med lite l\u00e4ttare tr\u00e4ning, gick p\u00e5 fester och gjorde resor med familjen.<\/p>\n \u2013 Efter min universitetsexamen jobbade jag ocks\u00e5 p\u00e5 ett f\u00f6retag i ett \u00e5r. Sedan blev jag tvungen att sluta.<\/p>\n ALS bryter ner kroppen steg f\u00f6r steg och numera f\u00f6rflyttar sig Victoria med permobil. Det senaste \u00e5ret har sjukdomen ocks\u00e5 p\u00e5verkat talet, n\u00e5got som gjort henne mer isolerad.<\/p>\n \u2013 Numera har jag sv\u00e5rt att g\u00f6ra mig f\u00f6rst\u00e5dd, s\u00e4rskilt p\u00e5 fester med h\u00f6g musik eller p\u00e5 en restaurang med mycket m\u00e4nniskor. Jag hamnar l\u00e4tt i bakgrunden och f\u00e5r sv\u00e5rt att visa min personlighet, f\u00f6rklarar hon.<\/p>\n F\u00f6r Victoria var det till en b\u00f6rjan en stor sorg att inte kunna forts\u00e4tta med friidrotten. I dag \u00e4r det betydligt enklare saker hon saknar allra mest. S\u00e5dant som andra bara tar f\u00f6r givet.<\/p>\n \u2013 Det jag saknar mest \u00e4r nog friheten att kunna g\u00f6ra vad jag vill, n\u00e4r jag vill. \u00c4ven om det bara handlar om att g\u00e5 ner och handla eller borsta t\u00e4nderna.<\/p>\n [\/et_pb_text][et_pb_text module_class=”fakta” _builder_version=”4.27.4″ _module_preset=”default” text_font=”||||||||” text_text_color=”#141414″ text_font_size=”17px” text_line_height=”1.5em” header_font_size=”24px” header_2_font=”Siri Expressen||||||||” header_2_text_color=”#141414″ header_3_font=”|||on|||||” custom_margin=”27px||||false|false” custom_padding=”16px|16px|16px|16px|true|true” hover_enabled=”0″ header_2_font_size_tablet=”” header_2_font_size_phone=”23px” header_2_font_size_last_edited=”on|phone” border_width_all=”1px” border_color_all=”#ebebeb” border_color_bottom=”rgba(0,0,0,0.15)” global_colors_info=”{}” theme_builder_area=”post_content” sticky_enabled=”0″ locked=”off”]<\/p>\n Victoria \u00e4r en av tre personer som medverkar i Hj\u00e4rnfondens julkampanj Hj\u00e4rnljus<\/a>. Genom att dela sin ber\u00e4ttelse vill hon sprida kunskap om hur det \u00e4r att leva med ALS och betona hur avg\u00f6rande forskningen \u00e4r f\u00f6r framtiden.<\/p>\n I kampanjen visualiseras tre neurologiska sjukdomar \u2013 ALS, Parkinsons sjukdom och alzheimer \u2013 genom specialdesignade ljusslingor. Varje slinga blinkar i ett unikt m\u00f6nster som illustrerar hur nervceller och synapser gradvis f\u00f6rlorar sin funktion vid respektive sjukdom.<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_2,1_2″ use_custom_gutter=”on” gutter_width=”2″ _builder_version=”4.27.4″ _module_preset=”default” width=”90%” width_tablet=”80%” width_phone=”90%” width_last_edited=”off|tablet” max_width_tablet=”640px” max_width_phone=”640px” max_width_last_edited=”on|tablet” custom_margin=”40px||40px||true|false” custom_padding=”0px||0px||true|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”1_2″ admin_label=”V\u00e4nster” _builder_version=”4.25.1″ _module_preset=”default” animation_style=”fade” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-content\/uploads\/2025\/11\/hjarnfonden-victoria-4.jpg” title_text=”hjarnfonden-victoria-4″ src_tablet=”https:\/\/kampanj.expressen.se\/vattenfall\/wp-content\/uploads\/2025\/11\/al-9.jpg” src_phone=”https:\/\/kampanj.expressen.se\/vattenfall\/wp-content\/uploads\/2025\/11\/al-9.jpg” src_last_edited=”off|desktop” _builder_version=”4.27.4″ _module_preset=”default” custom_margin=”0px||10px||false|false” custom_padding=”0px||0px||true|false” border_radii=”on|16px|16px|16px|16px” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_image][\/et_pb_column][et_pb_column type=”1_2″ admin_label=”H\u00f6ger” _builder_version=”4.25.1″ _module_preset=”default” animation_style=”fade” animation_delay=”600ms” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/kampanj.expressen.se\/hjarnfonden\/wp-content\/uploads\/2025\/11\/hjarnfonden-victoria-5.jpg” title_text=”hjarnfonden-victoria-5″ src_tablet=”https:\/\/kampanj.expressen.se\/vattenfall\/wp-content\/uploads\/2025\/11\/al-7.jpg” src_phone=”https:\/\/kampanj.expressen.se\/vattenfall\/wp-content\/uploads\/2025\/11\/al-7.jpg” src_last_edited=”off|desktop” _builder_version=”4.27.4″ _module_preset=”default” custom_margin=”0px||10px||false|false” custom_padding=”0px||0px||true|false” border_radii=”on|16px|16px|16px|16px” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_image][et_pb_text module_class=”bildtext” _builder_version=”4.27.4″ _module_preset=”default” text_text_color=”#757575″ text_font_size=”16px” custom_margin=”||||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n Victoria tillsammans med sin mamma Lotta. [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row custom_padding_last_edited=”off|phone” _builder_version=”4.25.0″ _module_preset=”default” background_enable_color=”off” width_tablet=”80%” width_phone=”90%” width_last_edited=”on|phone” max_width=”640px” max_width_last_edited=”off|desktop” module_alignment=”center” custom_margin=”||||false|false” custom_padding=”0px|0px|0px|0px|false|true” custom_padding_tablet=”|60px||60px|true|true” custom_padding_phone=”|30px||30px|true|true” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font=”||||||||” custom_margin=”||||false|false” border_color_bottom=”rgba(0,0,0,0.15)” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n ALS \u00e4r ocks\u00e5 en sv\u00e5r pr\u00f6vning f\u00f6r de anh\u00f6riga.<\/p>\n \u2013 Det \u00e4r fruktansv\u00e4rt jobbigt att se hur funktion efter funktion tas ifr\u00e5n henne, hur hon blir alltmer begr\u00e4nsad och beh\u00f6ver alltmer st\u00f6ttning, s\u00e4ger Victorias mamma Lotta Svenneling.<\/p>\n Hon \u00e4r utbildad sjuksk\u00f6terska och numera ocks\u00e5 dotterns personliga assistent.<\/p>\n \u2013 Vi \u00e4r tacksamma f\u00f6r all tid vi f\u00e5r tillsammans. Och n\u00e4r jag t\u00e4nker tillbaka p\u00e5 hur det var n\u00e4r hon fick diagnosen hade jag inte trott att Victoria skulle sitta h\u00e4r med oss idag.<\/p>\n I b\u00f6rjan planerade familjen bara dag f\u00f6r dag, sedan vecka f\u00f6r vecka. N\u00e4r den v\u00e4rsta chocken lagt sig b\u00f6rjade de v\u00e5ga se lite l\u00e4ngre fram.<\/p>\n \u2013 Jag t\u00e4nker inte flera \u00e5r fram\u00e5t, men till v\u00e5ren planerar vi att resa till Paris och det ser jag fram emot, s\u00e4ger Victoria.<\/p>\n Att \u00e4nnu en g\u00e5ng f\u00e5 fira jul tillsammans med sina f\u00f6r\u00e4ldrar och syskon \u00e4r ocks\u00e5 n\u00e5got hon l\u00e4ngtar efter.<\/p>\n \u2013 Den h\u00e4r julen k\u00e4nns extra viktig, konstaterar Victoria.<\/p>\n [\/et_pb_text][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font=”||||||||” custom_margin=”22px||||false|false” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n EXTERN L\u00c4NK: Se kortfilmen med Victoria<\/a><\/p>\n [\/et_pb_text][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font=”||||||||” custom_margin=”||||false|false” border_color_bottom=”rgba(0,0,0,0.15)” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n F\u00f6r ett par \u00e5r sedan startade hon och hennes mamma en egen insamling hos Hj\u00e4rnfonden till st\u00f6d f\u00f6r ALS-forskningen och f\u00f6r dem \u00e4r det en sj\u00e4lvklarhet att ocks\u00e5 delta i Hj\u00e4rnfondens julkampanj. Inte minst f\u00f6r att s\u00e4tta fokus p\u00e5 att sjukdomen \u00e4ven kan drabba unga m\u00e4nniskor.<\/p>\n \u2013 Man \u00e4r s\u00e5 hj\u00e4lpl\u00f6s i den h\u00e4r situationen, men genom att g\u00f6ra en insamling och sprida medvetenhet k\u00e4nns det som att man \u00e4nd\u00e5 bidrar med n\u00e5gonting, konstaterar Victoria och forts\u00e4tter:<\/p>\n \u2013 Det skapar hopp i en annars ganska hoppl\u00f6s situation, \u00e4ven om forskningen inte hinner hj\u00e4lpa mig: Alla framsteg leder ju n\u00e4rmare ett botemedel.<\/p>\n ALS-forskningen st\u00e5r i dag inf\u00f6r flera stora utmaningar, konstaterar Joakim Ramsberg, forsknings- och samh\u00e4llschef p\u00e5 Hj\u00e4rnfonden:<\/p>\n [\/et_pb_text][et_pb_text disabled_on=”on|on|on” _builder_version=”4.27.4″ _module_preset=”default” text_font=”Arial||||||||” text_text_color=”#141414″ text_font_size=”18px” text_line_height=”1.5em” header_font_size=”24px” header_2_font=”Siri Expressen||||||||” header_2_text_color=”#141414″ custom_padding=”||||false|false” header_2_font_size_tablet=”” header_2_font_size_phone=”23px” header_2_font_size_last_edited=”on|phone” border_color_bottom=”rgba(0,0,0,0.15)” disabled=”on” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n Drygt 100 000 svenskar lider av Alzheimers sjukdom och f\u00f6rlorar gradvis sitt minne. Den siffran ber\u00e4knas dessutom f\u00f6rdubblas till \u00e5r 2050. Det f\u00e5r inte ske och d\u00e4rf\u00f6r beh\u00f6ver forskningen ditt bidrag nu.<\/p>\nF\u00f6rs\u00f6kte leva s\u00e5 vanligt som m\u00f6jligt<\/h2>\n
Om Hj\u00e4rnljus<\/h3>\n
Foto: My Matson f\u00f6r Hj\u00e4rnfonden<\/p>\nBeh\u00f6ver alltmer st\u00f6ttning<\/h2>\n
Forskning \u00e4r enda v\u00e4gen<\/h2>\n
Ge en g\u00e5va i samband med alzheimerdagen<\/h2>\n